Cheetahs In My Shoes

living with the imaginary menagerie and all that it entails

Does Ehlers Danlos Syndrome Make you Tired

19/06/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
3 Comments

Does Ehlers Danlos Syndrome Make You Tired?

I was going to call this post “Fatigue in Ehlers Danlos Syndrome” but that sounds a bit grown up and medical so I thought I’d go for the outright question, Does Ehlers Danlos Syndrome Make You Tired? Now, this could … Continue reading

Capacity Homework

17/06/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
13 Comments

Capacity Homework

Now there’s a fairly unusual blog title – bet you won’t find anyone posting on that this evening…. Every week the Cheetah Keeper gets homework on a Friday to be handed in, ideally on the following Monday (but you have … Continue reading

Cherry Blossom at Beningbrough Hall

14/06/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
10 Comments

Jumping to Conclusions

This Ranty Friday thing is becoming to be a bit of a habit – maybe it’s not healthy spending the week going “oh that really annoyed me, I’ll blog it on Friday” – maybe I should spend more time looking … Continue reading

03/06/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
2 Comments

What is Ehlers Danlos Syndrome?

As you will have understood if you’ve read my other posts about Ehlers Danlos Syndrome, I’m not a medic.  I am someone who has Ehlers Danlos Syndrome and as such have set about to find out as much as possible … Continue reading

24/05/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
5 Comments

Pen Licenses and Super Spellers

Today the Sealion and Cheetah Keeper finish school for the May half term holiday.   When they return there will be a mere 7 weeks and 3 days until they complete this academic year.  As much as the beginning of 2013 … Continue reading

This adventure playground was a test of stamina and gross motor skills.  He was utterly exhausted when he'd done it, his hips were hyper-extending so much his feet turned out and he was so tired he could barely speak.  But he did it, and loved it and it did wonders for his confidence.  Just a 'normal' day really,

13/05/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
22 Comments

A Day in the Life of an Ehlers Danlos Syndrome Family

What’s a ‘normal’ or ‘average’ day for any family?  Get up, breakfast, school/work, home, eat, bed?  With the normal essentials of washing, homework and ‘jobs’, hopefully something cool/relaxing/engaging to do in free time and generally having the chance to just … Continue reading

Doughy skin, poor muscle tone, hypermobile, poor fine motor skills, poor sequencing, physiotherapy requiring, occupational therapy requiring, speech therapy requiring, podiatrist requiring Ehlers Danlos Syndrome Type III patient.  Can you tell?

07/05/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
42 Comments

Ehlers Danlos Syndrome at Primary School

It must be really hard being a SENCo (Special Educational Needs Coordinator) at a Primary School.  On top of your normal teaching and management responsibilities you have the responsibility of overseeing the care of a collection of children who specialise … Continue reading

Meet Tesco

03/05/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
11 Comments

Blood on the Walls

Tonight the Cheetah Keeper had a nosebleed.  This is, as you probably know, situation normal in our house but it makes it no ‘better’.  There is nothing ‘normal’ about hearing the words “nosebleeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeed mummy” being shouted, during the day or … Continue reading

01/05/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
14 Comments

Ulnar Nerve Transposition with Ehlers Danlos Syndrome

Blimey – there’s a title for a post.  I shall award myself 0/10 in the short/concise and to the point rankings. Anyway, I’ve been missing in action for a while.  Longer than I planned and it’s time to tell you … Continue reading