Cheetahs In My Shoes

living with the imaginary menagerie and all that it entails

This adventure playground was a test of stamina and gross motor skills.  He was utterly exhausted when he'd done it, his hips were hyper-extending so much his feet turned out and he was so tired he could barely speak.  But he did it, and loved it and it did wonders for his confidence.  Just a 'normal' day really,

13/05/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
20 Comments

A Day in the Life of an Ehlers Danlos Syndrome Family

What’s a ‘normal’ or ‘average’ day for any family?  Get up, breakfast, school/work, home, eat, bed?  With the normal essentials of washing, homework and ‘jobs’, hopefully something cool/relaxing/engaging to do in free time and generally having the chance to just … Continue reading

Doughy skin, poor muscle tone, hypermobile, poor fine motor skills, poor sequencing, physiotherapy requiring, occupational therapy requiring, speech therapy requiring, podiatrist requiring Ehlers Danlos Syndrome Type III patient.  Can you tell?

07/05/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
37 Comments

Ehlers Danlos Syndrome at Primary School

It must be really hard being a SENCo (Special Educational Needs Coordinator) at a Primary School.  On top of your normal teaching and management responsibilities you have the responsibility of overseeing the care of a collection of children who specialise … Continue reading

03/01/2013
by Jenny; Cheetahs In My Shoes & Just Photos By Me
2 Comments

Goodness Gracious, Great Balls of…

well, *ahem* … I haven’t posted since before Christmas.  Shock horror.  Rest assured dear reader that the Cheetahs are well, those who turned 1 celebrated their birthdays in style and a few more popped in for Christmas and don’t seem … Continue reading

12/12/2012
by Jenny; Cheetahs In My Shoes & Just Photos By Me
14 Comments

Sharing the Grump this Christmas

I was determined that this year was going to be different to last.  That we were going to manage our time and our strength and approach Christmas with joy and not outright dread.  We would plan, take things at a … Continue reading

08/11/2012
by Jenny; Cheetahs In My Shoes & Just Photos By Me
4 Comments

Compassion

If you asked a patient, a parent, a carer,  how they/their child/their charge/their relative would like to be treated by medical professionals I would imagine that “with dignity”, “with professionalism” and “with compassion” would be pretty high on the list. … Continue reading

26/09/2012
by Jenny; Cheetahs In My Shoes & Just Photos By Me
8 Comments

Octagenarian Expletives

I spent yesterday morning courtesy of the NHS at University College Hospital in Euston, central London.  I had achieved a rare feat – having two diagnostic tests on the same day.  Not just the same day, the same morning.  For … Continue reading

17/07/2012
by Jenny; Cheetahs In My Shoes & Just Photos By Me
19 Comments

All I did was bend over…

…to pick up one of the Cheetah Keeper’s trainers. It was Friday morning last week – we had an extra friend for breakfast and having nailed the 3 children to school, on time, in correct shoes, with correct stuff, the … Continue reading

04/07/2012
by Jenny; Cheetahs In My Shoes & Just Photos By Me
11 Comments

The Gallery – The Everyday

There’s not much that repeats itself everyday in our house – ignoring the getting up in the morning and going to school thing and I’m not posting a picture of me, first thing in the morning in my pj’s.  Sorry. … Continue reading